Know your enemy

Since my son was born, we knew he was sick, but we didn’t know what was causing it.  I have been on a quest to find out the cause.  Prematurity is hard on any kid, but other preemies I knew were doing better.  And having 6 food allergies is not common, especially in a breastfed infant.  Well, we could deal with a few allergies and  the diarrhea 8 times a day.  He started to get sick all the time.  He started being agressive, but didn’t seem to be doing it on purpose, he would just turn and smack a kid or bite for no reason.  At 2, he started having occasional seizures.  And he would shake his head often.  Falling further behind.  I would watch other kids his age and I knew something was seriously wrong.  But  no one could give us any answers.  The whole time I had been looking in the medical literature trying to find some connection between all the problems he was having.  He might be on the autism spectrum, with his speech and fine motor delay, aggression, seizures, food allergies, and GI problems.  I started researching autism.  Autism is a neurological disorder and often patients have seizures.   My son’s esophagus was very inflamed, not from acid, but from a rare condition called eosinophilic esophagitis, caused by food allergies in most cases.  So we decided to find out what the food allergies were and have him not eat those foods.  But the esophagus wasn’t getting better.  He would loose one allergy and gain another.  It seemed like every 6 months we had to change what food he could eat.  Reading accounts from other parents dealing with kids with the same problems, I would notice a pattern.  Often kids would have 1, 2 or 3 of the conditions in common, but not always.  It seemed like all these problems were being caused by the immune system.  So the end result is he has all these diseases, it’s strange for one kid to have so many problems, but that is how it often is in children with special needs.  To be continued…

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